Ok, since I was none to pleased with the errors and contradictions I found in my Pet Scan report and summary, I contacted the Radiology Department on Friday, to get to the bottom of this...If any treatment is to be based on what that report stated then they better have the right information! They had my BC in my right breast...WRONG it was the left one although the new tumor is in the right lung, they also had a CT comparison date of January 32, 2007......I must have not gotten that memo on January's extra day this year. I was told by the Radiology Dept to call my Oncologist who ordered the test go over the discrepancies and have the Doctor reorder an amended report...I am only a layman in reading these reports what else was incorrect that I DIDN'T catch??
I also asked that as soon as the Pathology report was available on my Lung Biopsy that I start treatment immediately, whatever that might be. I was told my Onc will be on vacation all next week....Ok, I'm not waiting can I see an associate of his...yes I can.....so the report is due back no later than Wednesday, so Thursday I have an appointment at 11:00 a.m. Chemo could be re- started that same day....or they may want to schedule surgery and cut out the tumor and I am sure radiation is in my future this time around...I was told that even though my Onc would be on vacation, his associates who will be dealing with me then will all be unanimous in the correct treatment plan for me this time around....again I wish I could fast forward to the healing part...I'm not looking forward to chemo again and if it's going to be even longer than before ( 8 treatments = 4 months ) I think I will break down and cry....it seemed the longer I was into chemo the harder it was on me emotionally and physically...."CURE" is such a beautiful word.....until then all I have is "HOPE."
I am just starting to lose my fingernails from my first attempt at kicking this cancer butt...can't really feel too much discomfort in that just yet thanks to the Peripheral Neuropathy (numbness in fingers and my toes) another blessing in disguise of sorts. So here I am back at square one getting ready to do it all over again....giving up is not an option........OOOO-RAAAH!
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24 comments:
still praying for your miracle.
~Meg
Praying for you to be healed and the strength to bear all you must face! Hugs,TerryAnn
Kim, please do the ginger spice every day that I've mentioend before if you are going to have the radiation. Hope you've already started doing this dear. Amazing that you have to do so much follow-up on your pet scans, etc. you shouldn't have too, but seems like all of us go through the follow-up, recheck, etc. - they ought to be paying us instead of us having to pay them....Arlene (AJ)
h
Kim...you and I know this is a mind game too...don't we? We conquer our minds by staying positive and thinking in shorter terms other than it is. Don't think of months each time think of treatments. Once the first one is over then there are only seven and so on. I know what you are in for. I had eight treatments. Then three weeks of radiotherapy. I know too about the fatigue.
Think! You did it before....see? You are here to tell the tale! Now you know the nature of the beast you can find ways to make it easier on yourself. 'Hope' is a beautiful stimulating concept. It encompasses all that you and your family and friends feel for your future. Go face it girl and give it your best! We will be here for you to rant and rave and sob and cry on. Its a lonely place you go to but you came out once before.. wounded but alive. By God don't we know you are alive!!!
May God be with you....you deserve that from Him. You brave! brave! woman.
May God give you strength to endure.
Jeanie
We all live by hope, Kim. It's not very good that your reports are full of errors and inconsistencies. It's probably quite draining - but keep the chin up :-)
I had forgotten about losing my finger and toe nails until I read this. The worst part about it for me was how they would get snagged on things like the bed covers and my socks. Makes me shiver thinking about it.
Kim, just want you to know that you are always in my thoughts and prayers whether I comment or not.
I love you and Pray that God blesses and heals you in Jesus name.
Lahoma
That's my friend Kim....taking the reigns, telling people how HER care is going to go. Not the sit around, wait for something to happen to me kind of woman! I know you are anxious to get started.....so that you can be finished. And I don't blame you one little bit.
GIVING UP IS NOT AN OPTION. You've got that right!!!! Time to kick some cancer ass again!
((hugs)) and love,
Jeanne
You are the most courageous gal I know. Stay strong, keep your faith and continue to keep your sense of humor, these along with our many prayers, will help you through this. Hugs, Dawn
KIm kick ass and make them get it right!
No mam......giving up is NOT an option!!!! :-)
Keep on them Kim til they get that report right.
love ya,
carlene
Fingernails are overrated anyways :) Yes and it's time to rumble, moms dont' give up, ever :)
hugs & love
Ang
Hi, Just stopped by to catch up on your journal.
Thinking of you with love and prayers ....
Penny
http://journals.aol.com/penniepooh/pennys-pieces-of-ohio/
http://www.myspace.com/pennysplace2gogh
You know they have those press on ones if you really want to! :-) Might be able to? And they grow back right? Some people don't go through Chemo & barely have nails...right! :-) I say watch a lot of Segal or Van Dame to feel the "kick ass" energy! or Chuck Norris! :-) Oh & "Go to the Mattresses" HA! I'm sorry...no I'm not a Godfather freak but I'm watching You Got Mail too much! HA!
Love to you
xxxxxx
lucy x
YOU SHOW THEM WHAT YOU ARE MADE OF! :)
-Kelly
YOur in my prayers..I don't comment much at all but I do read :)
http://journals.aol.com/breakaway1968/breakaway/
Carrie
h
I've been clicking through all myalerts looking for you.
Catching up with one of my favorite people on a slow Sunday
Marti
http://journals.aol.com/sunnyside46/MidlifeMusings
{{{{ Kim }}}} You are woman, hear you ROAR! You've got what it takes. You've shown it - and we've seen it - time and again. Just keep on being great, and the rest will find itself.
Always...
Ben
http://journals.aol.com/totallymentalben/better-left-unsaid
You are a very strong person to say bring it on again I'm ready!! I hope you win this battle and never have to do it again.
I have seen breast cancer in my own family once with my mother in law and lost my most beloved aunt to it 2 1/2 years ago be cause they said " your doing good lets take a brake for the holidays" and it was in that 8mo time it took them to get back to her that the cancer got to her liver. But that was her first round she never got the second chance. So if they say Oh your doing good lets take a brake for what ever reson you tell them hell no I'm here to fight and win, and I know you will win!
To any one reading this please support your local breast cancer fund raiser it does make diffrence not only the people going throught it but to the reserch as well. I have been in our local one here in nc for the last 12 yrs. I go every year I woundn't miss it for any thing even throught the 2 pregnancy I had with my girls. All the more to go I have girls.
MAY GOD SHINE HIS FACE UPON YOU AND BLESS ALL YOUR PREYERS AND HOPES AND DREAMS. You will win!
you are in my preyers
Just rosey 3
You are a warrior Kim... and you will kick its butt... further back this time...
be well,
Dawn
Kim, hope you are feeling ok your way, so use to your updating every day dear. Just want to say hi and let you know I'm thnking of you. Arlene (AJ)
Never give up and never lose hope Kim!!!
Keeping you in my prayers always
Hugs,
Terri
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