Friday, September 28, 2007
So this week they gave me half of a dose of the new stuff and I go back next Tuesday and have the other half and maybe my body will have adjusted itself better to it, if not I don't know If I want to continue taking that chemo, quality of life has to play a role in here somewhere. I can't walk around fighting cancer when the treatment makes me wanna die. So far so good with the half dose, but I also want to make sure if I have to take this chemo I am getting a dose high enough to do it's job. You have no idea how sick I am of being sick! Ugh!!!!
I'm still doing physical therapy even after a rough last week, but I saw the difference the exercises I was doing at home and the 2 times a week I spend at the center have made and when I feel stronger, I feel more like my old self. Oh yeah, my tumor markers WERE DOWN last week. Dr. Serious based the change of chemo on the fact that even though they were down, the tumors on my liver and my lung were slightly larger than last time per my cat scan of my chest, abdomin and pelvic area....so that is why the switch once again, on my chemo.
I was blessed with the news that my olderst Daughter and her Husband are ready to start a family come this spring......what better incentive to kick this disease than a grandbaby.....life goes on and I still want to be in it.....with a grandbaby on my hip of course! OK, Time to get ready for rehab!
Life is good and I am thankful!
Wednesday, September 19, 2007
So far I still feel good, there isn't supposed to be any fatigue with this, minor weakness but I'm hoping the physical therapy count reacts that side effect! I'm still banged up pretty good from my fall from the tub so I'm going to need to cancel Friday's PT appointment too. Kinda nice to get a 5 day break from having to do anything or go anywhere...Yeah I think I like that idea a lot!
Thanks for always taking time to read my blog, lift my spirits and for showing the kind of love that only J-Land is capable of sharing...I know not all see eye to eye on everything, but the majority is kind and caring and I have been very lucky to have met you all!
Tuesday, September 18, 2007
At first I thought I broke my right arm, it hurt to stretch it straight out, so I call Jim at work in tears of course, partly because I'm hurt, partly because I'm so damn mad! I was getting ready for my 2nd physical therapy....cancel that, I'm covered with ice packs! Because my Serum hemoglobin is so low you should see the bruising that comes along with that! I'm almost as purple as that beloved purple dinosaur "BARNEY" Well, at least nothing is broken but a couple hundred blood vessels and between the previous physical therapy, the meds I'm on and falling down I feel like I have been thrown by a Brahma bull (more than once! lol) Jim works only 10 minutes from home so he was here in a flash, the arm is just sore not broken.....my whole body is sore from the slam dunk.... it's a good thing I am already stocked up on pain medication.
But I'm still taking my colorful self for chemo today.... I refuse to give up my chemo schedule and I am sure I am going to get the same lecture from Dr. Serious Staff that I got from Jim......"If you would of had the walker waiting for you outside the tub you would have had something to hold onto as you were getting out!" So I'm back to being on lock down and no more showers during the day unless someone is home with me...... Well, so much for my short run with my old independence! 44 year old stubborn Irish women aren't fond of using walkers at this age, so it just sits folded up in the corner of my room reminding me of all that cancer has taken from me and left behind....if I didn't know that someone could really use it when I'm done kicking this cancers ass I'd blow the damn thing up myself, but I know someone out there will need one and won't be able to afford it, so when I'm done I will donate it to a nursing home where I know someone will look at having that walker as a gift and not constant reminder of a difficult time in my life.
Monday, September 17, 2007
Ok, I have to admit Physical Therapy is doing wonders for me! I have stretches to do at home and then some balancing to do between bars (not those kind of bars! LOL) parallel bars....it's my legs and my balance that I need the work on. I could already tell the difference at home on my stairs (really hating this tri-level now! LOL) I have PT twice a week, Mondays and Fridays. I will be doing some weight training too at some point.
Tomorrow is chemo day and I also see Dr. Serious about my brain MRI and Cat scan of my Chest/Abdomen/ Pelvic area......I'm a lil nervous about the brain MRI because my migraines are starting to come back and they left last year when I went into early menopause due to the chemo treatments.....but it is what it is and I will deal with it. Food is back to being blah so it's just small bites of this and that to give me the strength to get through the day, I'm even taking vitamins! Do you know how long my Mother has been trying to get me to take vitamins?? probably over 35 years! lol So I'm a slow learner! lol I wish I liked the health shakes more, easy nutrition... but I stop short of gagging when I think I have to drink one, or it takes me a half an hour to get it down my throat!
Friday morning I actually left the house by myself, I needed a couple of warm shirts for the cooler weather since none of my old clothes fit me anymore...."Extreme Cancer Make-Over" not the way I wanted to do it, but chit happens right? I guess cancer looks good on me! lol lol lol
We spent the weekend at the lake and I actually joined everybody for a couple of hours around the fire pit....I surprised even Jim when I came walking up that hill..a little bit of normal felt good, of course by the time I was ready to go back Jim had to walk with me, but it felt so good to be able to do something that I took for grant it all these years...a simple walk through the woods..........alone.
Tuesday, September 11, 2007
Lil Jimmy behind the lens 2007
It's going to be another crazy couple of weeks but at I least I'm off chemo this week...I have to go in today for labs and my bi-weekly shot of Aranesp Aranesp®--Prescribing Information and then I have to wait and get the lab results to see if I am going to be getting another blood transfusion today. 2 pints = 5 hours but I love the staff and we have a good time when my favs are there. So far I have 6 sessions of PT set up with more to follow I'm sure.
Tomorrow I have my psychical therapy evaluation and my 1st session...I have a feeling I'm not going to like it all, but I know it will do me a world of good getting my strength back and maybe some more of my independence....missing that the most! Now my 16 year old daughter who has her permit is LOVING that she gets to drive Mom everywhere....Someday's I have no problem focusing on driving, other days I have the attention span of a gnat..... Chemo, Norco, morphine patch, liquid morphine.....Me on the road? Rachel on the road? Both scare the hell out of me! lol
My days of multitasking are going to be put on hold....That frustrates me the most.....but boy do I love when I have a good thinking day!!! Where everything falls into place and I have some what of a "normal" day. Still waiting for the puffiness of the steroids to wear off...Dr. Serious weened me off of them because he thinks that is what is causing the leg weakness....it's always something! lol lol lol
Dr. Serious was on vacation last week, the test results have not been studied yet (Brain MRI and CatScan of C/A/P) BUT.........I didn't need anymore blood, I didn't need the Aranesp shot AND my tumor markers were down.....3 good things IN A ROW!!!!
Life is good and I am thankful!
Thursday, September 6, 2007
The rest of the after noon was touring my GF Aunts house and grounds. Just beautiful! Took off in the golf cart to see the woods, the old barns, the new Barns by the time we got back to the main house I'm pulling burrs out of Goldilocks and Mishy is pulling them of the seat of her pants...another funny moment we always seem to have when we are together....love you two!!!
Soon as I get the new test results, I'll share! Have a good day!
Tuesday, September 4, 2007
MAYBE third time's a charm huh? My blood work wasn't fabulous, (platelets) but I begged and I pleaded and they gave in as long as I go in Friday for 2 bags of blood (4 hour process and since I have to be there Thursday for my Brain MRI and cat scan of the chest/abdomin/pelvic , I might as well bring in a pup tent (me and boo of course) a sleeping bag and
Somemores and hang out there till next week when physical therapy starts! lol
I felt stronger and my legs didn't give me that much trouble now that Dr. Serious is once again weaning me off of the steriods....I think physical therapy will do wonders..as long as they don't hurt me too bad trying to put me back together again...I would really hate it if my Irish temper got in the way with some ones face and my foot...I heard P/H can be pretty painful....I'll just norco the chit out of myself and maybe I won't care what they do to me! lol lol lol
Hope everyone had a great weekend.......too hot here in Chi-Town for me so no direct sunlight or even reflective ( I burn waaay to easy) and the air was too hot to take into my lungs...thank God for dusk and early mornings! The pig roast was a big hit....my chocolate cup cake was even better!
Saturday, September 1, 2007
I posted more vacation pics in my photo blog.....the link is on the top of my "Other Journals" still more to come but I'm spending the weekend at the lake again..........Pig Roast!
Enjoy your Labor Day Weekend!!!!!