Ok, Friday afternoon yes I know, I purposely picked Friday the 13th and had my newest brain MRI and then today they will be doing a new Cancer Tumor Marker test along with my cbc's and other stuff and then next Friday I meet with Dr. Serious ad Dr. Nuke and we go over the latest info.
I will bring him up to speed on my strength, endurance all around yucky feeling and living on maybe 350 calories a day....I know....not good! but if something doesn't appeal to me I can't eat it. I can't tell you how many things Jim has prepared for me or ran out and bought for me to only take one bite out of it and say"YUK!".....well I am still calling this "My Extreme Cancer Make Over" NOTHING aappeals to this last round of chemo......... Good for my ass but bad for the rest of my body. They say that the possible long term side effects from the whole head radiation could be a change in personality.....Hmmmm maybe My Momma will her good lil Irish Cathoilic girl always wanted??? Only time will tell! lol lol lol
We got back from Kentucky where all of My Jim's family lives, late Tuesday night and I slept my sleepy butt dead for almost 2 days.....maybe a road trip wasn't exactly what the Doctor ordered talk about saddle sore but I needed to see Jim's family and they needed to see me and it was Jimy's Brother Allen who broke the code as to the changes that have taken place with me since I got sick....I got quiet as a church mouse.........so un -like me! I'm more like a loud vegas act that borders a lil on the raunchy side of the strip! lol lol lol
I only went out to the lake once this weekend, spent most of today sleeping the day away......it's becoming a love/hate relationship with my bed. My Jims are at Nascar Race....both in total heaven for sure........I don't get it myself if I'm going to go round and round it's gonna be at a mall! lol Now that kind of lapping I totaly understand! lol
side note AJ from SC, Arlene......So many times I have tried to write you an email but you don't have it where your accepting my email adress. Can you change that so I can email your back from time to time?
Thanks Kim
46 comments:
My prayers are with you and all my body parts are crossed that everything is looking good! Hope you start getting your energy back!
Love and Hugs,
Jenn
wishing you only the best... only good news from here on out! it's kinda strange... i only know of you from here... but yet i think of you often and say a little prayer for ya. fingers are crossed... good luck at your next appointment. you are the toughest woman i think i have ever known. Jo
Kim, as always you are in my thoughts and prayers and I'm hoping for good news when you meet with Doc Serious and Dr. Nuke, dear. Am I the AJ you want to write Kim, if so added your name so you can write me. You just take care of yourself, hope you feel like eating soon so you can keep your strength up. Bless you....Arlene (AJ)
Kim, just reread your note - I'm AJ from SC, not TX so maybe you meant someone else not me, but if you'd like to write me, would love hearing from you dear....I'm a former Richton Park, IL girl.....Arlene (AJ)
I hope your appetite comes back soon to you! I consume 350 probably in one setting! Will keep you in my prayers!
Kim, you are in my thoughts, prayers and heart. Always.
I'm with you at the mall!
Love N Hugs,
Michelle
h
I am glad you got to visit family. I hope your appetite comes back! Did Dr. Serious give you any advice? When will you find out the results on your tests? I'll keep my eyes peeled for your entries. Take care, Stephanie
This may transform you into a good little Irish Catholic? Then for sure I'll know the Pope is on it ;-). ~ Mary
I hope you have a good week. As always, you are kept in my prayers.
Pam
((((Kim))))) Damn chemo....I wish you could get your energy back and that you could eat a little more. If you could eat, you might get that energy back. In any event, I am always thinking about you and sending you my love via ((hugs)) and good, positive, Irish Catholic vibes!!! (lol)
((hugs))
Jeanne
Kim,
I hope you get to the bottom of this... maybe you are anemic? Worried about you sweetie... keep us posted! I am keeping the prayers headed your way!!!!
be well,
Dawn
Kim....I love you so much..and I can feel how tired you are by reading this...Do you think that yoou may eat a little cambell's cream of chicken soup with some saltines? The reason I ask is ; that was the only thing that my daddy could eat and it would stay settled on his stomach...Please try, ok? Please???
God bless you,
love ya,
carlene
your spirit shines strong, but I know it's hard
Love you so much
Marti
have a good week:)
Deb
Mandy meds take way our taste and it isn't a nice thing either.I was the same at one time when I was very very ill.Have you tried porrage,many people I know have eaten this or rice pudding.My prayers are thousandfold your appetite will return soon.You are one great lady and an inspiration to all of us,still you keep us updated no matter how you feel.I admitre you so so much.I.m with you on the mall LOL!! Prayers being said Take Care KimGod Bless KATH
astoriasand http://journals.aol.oco.uk/astoriasand/MYSIMPLERHYMES
I can't offer any advice, have never had any experience with cancer.... but I can offer prayers and still am holding you up there!!! Look forward to reading your journal next friday for the latest news. Hope you appetite is better soon!!
Take care,
Joann
Well you sure have a busy week ahead and you will need all your strengh. We are all rooting for you and praying that the results will be positive and that your appetite will return soon. I'm praying hard for you and the family Much Love Sybil xxx
Come here and let me give you a huge hug. (((((((((((((((()))))))))))
Betty
h
Love and hugs to you, your in my thoughts and prayers
katie
h
My thoughts & Prayers are with you. I found it to be so difficult waiting for the results of the tests while my mom went through treatment. I still stress when she has checkups. Take care of yourelf.
Lisa
http://journals.aol.com/wwfbison/life-on-a-bison-farm
Hi Kim, Have you ever tried any of the nutrition drinks? (Ensure etc, Wal-Mart has their own brand of it which is quite a bit cheaper and comparative in taste) They have some yummy flavors (the butter pecan is oh so good!) and you would at least be getting vitamins and calories. After you go so long NOT eating, it's easy to get into a rut. You're doing everything you can medically to get well....tell yourself that food is also a "medicine" that needs to be taken to get strong and well.
In 1999 I had a cerebral AVM bleedout. It was a long, difficult road of recovery and I am left with deficits and other complications. I mention this to you because I had a personality change after the bleedout. Anytime there is brain trauma, there is risk of personality change, more so if it occurs in certain areas of the brain. Everyone that knew me prior to the bleed sees the difference. I FEEL it. I liked myself better pre-bleedout but there is nothing I can do about it but accept the "new me". It is an odd feeling that not many people can understand. If you need someone to talk to who understands, feel free to e-mail me. Take care, be well.
Hope the outcome is good, Kim. Discuss your appetite (or apparent lack of it) with the doctors, and they may refer you to a dietician (nutritionist).
h
So glad you are getting some rest. Try to eat more hon!!!!
Lisa
Kim you sound tired, very tired. I do remember my best friend re;lationship with my bed and that damn tv running 24/7 to keep me company while everyone else popped in and out for a bit.
The only one that could lay around as much as me was my Dog "Abbey" and she really thought it was wonderful.
This is my first summer in 6 years I am well. I didn't think the day would ever come....
Know That I Am Thinking Of You EVERYDAY.
Be peaceful and heal my friend.
I miss you at Write Words but someday when you are strong...let us hear from you again.
Love TJ
I am hoping and praying for the best results! I am jealous of them being at Nascar, I love it!! Linda
Kim we'll all await hearing how things went for you today. See you did mean me in SC, send me a note anytime, would love to hear from you. I've added you to those I'll accept mail from. Bless you always dear....Arlene (AJ)
It sounds like you are really going through alot. It makes people like me feel like scum for complaining so much over nothing. I have no real physical problems, mine are in my head. I have anxiety problems, with panic attacks. It is very scary when suddenly out of no where I feel like I am going to just drop dead or go crazy. You sound like a strong person and good luck to you. I am adding you to my alerts. http://journals.aol.com/ma24179/missyzstuff
Prayers, good thoughts and if need be, crossed fingers -- waiting with you for good words from Dr. Serious and Dr. Nuke. You are loved. :)
You know I'm praying and believing for this Merry Go Round to stop.
Nelishia
http://journals.aol.com/nelishianatl/WishingandHoping/
Hi Kim,
I haven't been around much, having health issues also. I've tried to catch up and see how you are doing. I keep you in my prayers always....and hope you'll regain your strength and start getting your appetite back. You're such a brave lady and I admire you so much!
Take Care,
Love,
~Bilinda~
I totally agree with the mall comment! I am sending my prayers up for you.
{{{ Kim }}} Ok, the sorbet suggestion didn't work out. I have an easy carrot cake recipe that's dynamite. Moist, with some of the best-tasting calories you'll ever enjoy. How's that sound? (Dammit, girl, we have to get you to eat!)
Ben
http://journals.aol.com/totallymentalben/better-left-unsaid
so sorry to hear you are having trouble eating. i hope you find some magic food that get you through. take care and many hugs!
tina
I'm so sorry you are going through all of this.
I hope you feel better and soon.
I'm sure there is something the good "Docs" can give you to help rid you of feeling so yucked out. And tired. And just plain blah.
Your tastebuds may be whacked out for a while longer:*( and that sucks.
I'm keeping my fingers crossed for you.
Love & prayers-
Niki
Waiting to hear from you Kim and hear how you are doing, my dear. Hope you are getting along ok your way and feeling better. Just wanted to say hi and let you know I was thinking of you....I always am. Arlene (AJ)
Friday the 13th has always been a lucky day for me, but then I have a very contrary personality, as do you my dear. Hope the tests come out in your favor. I went out to the ponds today. The new cattails have emerged. They are so beautiful. You sent me a picture of some a long time ago and now I always think of you when I see the brown velvet stalks.
My prayers are with you. Feel better soon, and hopefully, eat better soon.
Jude
http://journals.aol.com/jmorancoyle/MyWay
Hi Kim,
Its been a week...Im worried :(
My thoughts are with you...I really "Hope" with you.....Please know that..
God Bless You and Your family,
Love Lisa
my hubby love nascar, we went to Joliet the first two years. lucky for me I sat next to a compfy fat guy that didn't mind my napping on his arm! ;) rose~
hope you get some strenght from somewhere!Beckie xx
Sending you some positive vibes
((((((((((((((((((((Hugs ))))))))))))))))))))))
Jayne
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